You know, when I started blogging I had the intention of doing fashion related posts more than I did health ones however that hasn’t been the case. Although I still shop online 5 out of 7 days I don’t really have the energy to be standing outside in the wind, rain and even hail, posing in new outfits. It’s just not realistic in the slightest. Ok I’m gong off the point, as per! Just quickly, I am still on a gluten free diet, and I love it and it’s done me a lot of good.
So a year or more later I have been finally diagnosed, pretty bitter sweet if you want my opinion. I have been diagnosed with something called Chronic Fatigue Syndrome (CFS/ME). This is NOT laziness. It’s far from it.
I have had 19 blood tests in my life time, mostly from the last two years, the final blood test results came back all clear which is such a relief however it lead me to be diagnosed with CFS. Some symptoms include:
• No energy (can’t even whisk cake mix)
•Constant tiredness/difficulty sleeping
•Sensitivity to light, sound & smells
•Lack of concentration
•Aching muscles & joints
There are roughly 40 symptoms, you don’t get them all, thankfully, but you do get many of them, and the ones you do get are horrid and make you feel very, very unwell. At first I would relapse once every two months, now it’s more like every two weeks for a week at a time (which would be why you’ll see an abundance of baking photos uploaded to my Instagram one week and then the next there’s nothing).
I’m trying to not go on and bore you however, as well as letting people know what’s going on with me I also want to help others already diagnosed.
The first thing I was told today after my diagnosis was that there is no cure. This broke my heart because I don’t want to feel this way forever. I wouldn’t wish that on anyone. The second thing I was told is that I could try anti depressants…I lost it at this point, let me stress to you, I am not depressed, after I ripped the doctors head off she told me that it wasn’t for depression, it was because it released a hormone called Serotonin, which helps with sleep as obviously fatigue is a main factor in this. I decided against those, I have researched them and I’d rather try other sleep techniques, isn’t counting sheep supposed to work? 😉
After leaving my appointment I was silent, I had no words, none appropriate to type on a blog read by all ages anyway! I had just been diagnosed with something quite nasty yet I was given no help. 250,000 people are diagnosed with CFS a year. This made me realise that I have to do something. I have got to raise awareness and I have got to help others going through what I am. I will fight my hardest to get answers and help and I will get the results I want. I want no one to feel how I felt coming out of my consultation. I’m lucky I have a good support network, my parents, friends & family. Some people will be alone so it’s my duty to be there for them.
So, that’s basically it, I mean there’s a whole load more I could say but I’ll save that for individuals who get in touch with questions or those who want advice. I have to fix myself, I have to experiment on me before I can advise others but I can help from what I know already.
Instagram – Lovekensa
Email : Lovekensa@hotmail.co.uk